NICHQ logo

NICHQ (National Institute for Children’s Health Quality) is an independent, nonprofit organization working for more than a decade to improve children’s health. We help organizations and professionals who share this mission (typically, healthcare professionals and delivery organizations, foundations, government agencies, and community organizations) make breakthrough improvements so children and families live healthier lives.

Pacific Sickle Cell Regional Collaborative logo

The Pacific Sickle Cell Regional Collaborative (PSCRC) is a federally-funded project that seeks to improve the health and quality of life of children and adults with sickle cell disease, no matter where they live or seek care. PRCC bring together sickle cell disease experts, people with sickle cell disease and their family members, primary care providers, sickle cell community based organizations, policy makers, public health departments, and others to address the unequal treatment that has led to poor care and poor outcomes for this population. Eight states and the US Pacific Jurisdiction make up the Pacific Sickle Cell Regional Collaborative: Alaska, Arizona, California, Guam, Hawaii, Idaho, Nevada, Oregon, Washington.

Midwest Regional Coordinating Center (STORM) logo

The Midwest Regional Coordinating Center (STORM) brings together the hematology and primary care communities to collaborate with patients and families on quality improvement initiatives to improve access and delivery of care and outcomes for patients with sickle cell disease (SCD) in the Midwest. Six states in the Midwest region (Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin) have joined together to design, implement, and evaluate a project that will effectively engage our regional state partners and patients in a collaborative network to improve outcomes for all individuals with SCD in the Midwest.


Northeast Regional Coordinating Center (SiNERGe) website in development


Heartland Regional Coordinating Center website in development